Title: Ten Years of the Big Box of Words
Presenter: Robert Rummel-Hudson, Author
Schuyler Rummel-Hudson, Student/AAC user
Ten years since his daughter’s first encounter with Augmentative and Alternative Communication, Robert Rummel-Hudson (author of Schuyler’s Monster: A Father’s Journey with His Wordless Daughter, St. Martin’s Press 2008) reflects on his family’s experience and his observations on the present and future of assistive technology and disability advocacy. He will be joined by Schuyler, who will share her own perspective on her life with her Big Box of Words.
The most interesting thing about that abstract is the fact that Schuyler will be joining me, as a co-presenter. As we start putting our presentation together, she's trying to organize her thoughts. After talking about it, we'd decided that rather than just sitting down and trying to write something off the top of her head, Schuyler would rather answer specific questions and integrate that into her presentation. And she would like to get those questions from the many people out in the world who have followed her story for so long.
So if you have a question that you think would help Schuyler present her story, you can ask it in the comments here, on my Facebook page or via email at firstname.lastname@example.org. We talked about what kinds of questions she'd be asked, and came up with some categories that she's comfortable with.
1) Her use of assistive technology over the past ten years.
2) Her experiences in school.
3) Her experience with polymicrogyria, her "little monster".
4) Her future, both school and her adult life.
5) (And this is a big one, I think.) The parts of her life and her world that have nothing to do with her polymicrogyria. The Monster-Free Zone.
We both thank you in advance. After our presentation on August 3rd, I'll reformat her answers and post them here for everyone.