August 17, 2011

Ask Schuyler

I got involved in a discussion on another site concerning self-advocacy versus parent advocacy that was interesting for about an hour before we all became angry and entrenched.  Well, what are you going to do?

Anyway, as a result of that discussion and its spinoffs on Twitter and Facebook, I asked Schuyler if she would like to actually say something herself.  She didn't have anything she particularly wanted to express, but when I asked her if she'd be willing to answer questions that other people submitted, she was in.

I've already gotten a few on Twitter, and I think she's going to begin answering those after her lunch date with Chef Boyardee is over.  But if you would like to ask Schuyler something you can do it in the comments, on Twitter or Facebook.  Or email me if that's how you roll.  I'll post her answers tomorrow.



Update: Well, "tomorrow" is going to probably end up meaning "Saturday". Apologies, but we got busy with life. I'm kind of okay when that happens. Anyway, Saturday looks like a good day for questions. See you then.

16 comments:

Lynda Hardy said...

Hi, Schuyler! Thanks for letting us talk with you! I'd love to know what you like best about middle school so far, and what you wish was different about it. Thanks!

Rebecca said...

Hi Schuler. Just wanted to let you know that my son, who is 6 also does not talk. He uses a talker just like yours except his is green. Jeremie is going into first grade, what advice can you give him about making new frieds?

Suzanne said...

Hi Schuyler!

You've got a wonderful fashion sense, and I would like to know - what are a couple of things that you are excited to wear to school? Do you like tights and tennis shoes or boots? Do you prefer skirts or pants?

Thank you!
Suzanne

joee_t said...

Hi Schuyler,

I just finished your dad's book, and it's been inspiring to read about your life. My son is 4 and has mild cerebral palsey; he starts a special-ed preschool program next week and is very excited about it. I'm so glad he has role models like you out there.

Here's a couple of questions for you:

- Tell me about the your biggest accomplishment so far.

- What do you want to be when you grow up?

Emily said...

Hi Schuyler! I am a future speech language pathologist and wanted to ask about Pinkessa :)

When do you use it most?

How would you change it so that works best for you?

Hope you have a great start to the new school year!

Suzy said...

Hi Schuyler!

There is a small town in Virginia with your name and it is even spelled the same, i drove by the signs to it a couple weeks ago and it made me think of you.

My question: What hair color of your's has been your favorite? I dye my hair odd colors too, and so far my favorite one is always bright pink.

Megan said...

Hi Schuyler,

What is the toughest thing about not being able to talk? Do you ever wish you could just tell people what you think? (Although it sounds like you do a pretty good job of it anyway!) I admire your spunk!

Megan

Alexis said...

Hey there! If you could have any three pets, what would they be?

Are you dressing up for Halloween? What is your costume going to be?

Unknown said...

My 16 year old daughter Rachel asks...

"How do you stay so awesome?" And, "Where do you get all those great monster toys?"

BigRed said...

This is a great idea! Hey Schuyler! I've been following your story since 2004, which makes me feel old.

My first question is: Do the kids at school ever pick on you? If so, why do you think they pick on you and how do you answer them?

Second question: I visited Plano last summer and I got super excited when I saw the Purple Cow, because I remembered it from this blog. I didn't get to try it though :( When I visit Plano again, what's the best thing to get at the Purple Cow?

Anonymous said...

Who is your favorite of your father's friends?

Kidding! I hope you enjoy your new school. We love you.

Jim & Kim

Berber Anna said...

Hi Schuyler! What's your favourite story?

reva said...

If you could either fly or be invisible which would you be and why?

C said...

Hi Schuyler- You might remember us from the Apraxia Walk-a-thon in 2009. You walked and played with my daughter Ava. She is 5 yrs old now and she is getting the same Big Box of Words as you have. Here's my questions:
1. Was it hard for you to learn how to use it?
2. Do you like using it, or do you like signing better?
3. When other people ask why you can't talk, what do you wish you could say?
I often wonder if Ava hates the way I explain it in front of her- so maybe you can help me find a better way to explain to people without making her feel bad in the process. Oh-Ava just came into the room and I told her what I'm doing. She ran and got a video and pointed to it. So...she wants to know if you watch Backyardigans too? Thank you for answering quesions..you are really a big help to Ava. ~Christy and Ava

Claire said...

My son is 11 too. He just started being a bit self conscious. If I look at him and watch him read or do something he gets all embarrassed. And horror of horrors he won't kiss me on the cheek anymore...even today which is my birthday. Lucky for me he will let me kiss him (not in public of course) and hug him.

What do your parents do that embarrass you?

Miz Kizzle said...

Hi Schuyler! If you could have a monkey, would you rather have one who can do Braginskii collisional fluid equasions or one that wears a funny hat and rides a bicycle?