I know you know this, but just wanted to restate the fact that not all doctors are right 100% of the time. When I was diagnosed with NF at two years, my doctors told my parents I'd never make it past the learning or capabilities of a 6 year old. Now I wish I knew those doctors, so I can go hunt them down and tell them to fuck themselves. That would feel awesome.
I know NF and BPP are two totally different things, but just wanted to put that out there. Maybe one day Schuyler will go up to her doctors and tell them to screw themselves, too.
PS- love the "Hope you get cancer" comment. I'd feel justified. Sometimes I wanted to tell people something like that too, so thanks for expressing it for me.
My brothers were adopted when they were six. Both of them were severely neglected, abused, and had lead poisoning that led to brain damage. They, in turn, did not follow all of the social norms in public places. Once, in a restaurant, they started spitting at each other. A lady looked over at my mom, and said, "They should be spanked!" My mom sighed, and said later, "I have to pick my battles with these two, and spitting, in comparison with everything else is just NOT one I care about right now." People in public: Remember that you never know the whole story.
I read your book last night. I'd never heard of you before but now I can't stop thinking about your kid. What really irks me about your story, even more than the bitch in the store, are the bureaucrats at her school in Austin. To me, their arrogance, egos and need to keep an innocent kid down just to prove to her parents that they are not smarter than the bureaucrats, is pure evil. How dare they try to ruin a kid in order to hide the fact that they are nothing more than mediocre idiots? It drives me nuts and I really hope you have made sure that your story and what they did to your girl was detailed, with full names included, in a long, written rant to the district, with evidence of how wrong they were. Anyhow, reading about your daughter makes me feel that despite her monster, you still won the prize. I wish her the best.
12 comments:
Congratulations on another great review. That you deserve, Mr. Fancy Pants Socialist.
I read the Fresno Bee this morning - your story is inspirational. I can't wait to read the book.
I presume that this story is meant to balance out last weeks' "Daughter with rare disorder is chained to boiler and beaten for insolence."
I love headlines :) Seriously though, congrats.
I had the same thought, Phoebe; it sounds almost like a headline from The Onion. Congratulations on the article!
I know you know this, but just wanted to restate the fact that not all doctors are right 100% of the time. When I was diagnosed with NF at two years, my doctors told my parents I'd never make it past the learning or capabilities of a 6 year old. Now I wish I knew those doctors, so I can go hunt them down and tell them to fuck themselves. That would feel awesome.
I know NF and BPP are two totally different things, but just wanted to put that out there. Maybe one day Schuyler will go up to her doctors and tell them to screw themselves, too.
PS- love the "Hope you get cancer" comment. I'd feel justified. Sometimes I wanted to tell people something like that too, so thanks for expressing it for me.
"Don't assume that an out-of-control child is the product of poor parenting. The child may have a neurological condition. "
Wow - if only everyone could understand that.
Great article.
Oh Rob, I spit out my iced tea when I read "I hope you get cancer" That woman so richly deserved it:) xoxoxo
My brothers were adopted when they were six. Both of them were severely neglected, abused, and had lead poisoning that led to brain damage. They, in turn, did not follow all of the social norms in public places. Once, in a restaurant, they started spitting at each other. A lady looked over at my mom, and said, "They should be spanked!" My mom sighed, and said later, "I have to pick my battles with these two, and spitting, in comparison with everything else is just NOT one I care about right now." People in public: Remember that you never know the whole story.
May I bow down to your wonderfulness? Can't wait to read the book!!
I read your book last night. I'd never heard of you before but now I can't stop thinking about your kid. What really irks me about your story, even more than the bitch in the store, are the bureaucrats at her school in Austin. To me, their arrogance, egos and need to keep an innocent kid down just to prove to her parents that they are not smarter than the bureaucrats, is pure evil. How dare they try to ruin a kid in order to hide the fact that they are nothing more than mediocre idiots? It drives me nuts and I really hope you have made sure that your story and what they did to your girl was detailed, with full names included, in a long, written rant to the district, with evidence of how wrong they were.
Anyhow, reading about your daughter makes me feel that despite her monster, you still won the prize. I wish her the best.
Hey! I used to work there, and with Mary Lou.
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