Overall, it wasn't a bad IEP meeting. Most of the team was very responsive to the philosophical shift we asked for, and they seem eager to find a way to engage with Schuyler in a more comprehensive way. It did feel a little like IEP meetings of old, where we fought tooth and claw for what we felt our daughter needed. It was emotionally exhausting, like being attacked by vampires and bled dry,and we both felt like we'd resorted to becoming Those Parents for the first time in years. Not a great feeling, but a necessary one, I guess.
 |
| Schuyler's poem, recopied by memory as we took the photo she wanted for her blog post. |
Pretty disgusting you keep getting attention, making (very little since your book is garbage) money out of your daughter's condition. Way to Go Rob! Way to Go Capitalism!
ReplyDeleteThanks for reading!
ReplyDeleteI wonder, Horacio, if you think the same thing of Mitch Albom, Frank Deford, even Anne Frank? People who write and tell their stories and the stories of their (sometimes challenged, sometimes suffering) kids are simply capitalists taking advantage? If you knew how little MOST authors actually make for the amount of blood sweat and tears that go into a memoir, you wouldn't make ill-informed, ridiculous comments like that. Beyond that, if giving your kid a voice in a world where she would otherwise largely voiceless and if working to advocate for people with disabilities - is "disgusting" - I'm pretty sure Rob would gladly wear that label. You're obviously a jerk.
ReplyDeleteI remember reading your writing years ago and finding you again. You are a talented writer and a necessary voice. Thank you.
ReplyDeleteThank you! That means a lot.
ReplyDelete