Fighting Monsters with Rubber Swords

I haven't written much here, not for a while. Part of that is the simple fact that blogging has become something of a dying... well, I w...

 If you've read Schuyler's Monster, you may remember the opening scene, the meeting with a neurologist at Yale at which we received ...

On this Christmas morning, I want to reach out to everyone whose lives have radically changed this year.  That's certainly true of Schuy...

So. I suppose we have some catching up to do. Schuyler and I are in Virginia. Where we live. Well, that's partially true. Schuyler lives...

Today is the seventeenth anniversary of Schuyler 's diagnosis of polymicrogyria. There have been times in the past seventeen years when ...

There’s a dream I’ve had repeatedly in my life, including quite recently. In this dream, I am driving down a long, remote West Texas road at...

Sixteen years ago today, everything changed. I mean, nothing changed, but everything changed.  Schuyler was diagnosed with polymicrogyria...

Here’s a fun fact that I just recently learned. When they (the people who make up such things, almost certainly with a clipboard in hand) de...

Last week I had a heart catheter procedure, to measure the amount of blockage in my shitty, shitty heart and possible put in a stent or two....

So I guess I’m going to talk about this thing, which has nothing to do with disability advocacy or Schuyler, except of course it does, becau...

Okay, so let’s get this out of the way first. I was wrong. I was very, very wrong. A few years ago, I wrote a blog piece about something I...

October 11, 2018 6:00pm Uncharted: An Exploration of AAC, Advocacy and Agency Featured speaker,  with Schuyler Hudson Bridgeway Academy 2500...

There’s a lot I could tell you about Schuyler’s trip to Gold Coast, Australia for the 2018 International Society for Augmentative and Altern...

“I thought I was the only one.” It was a surprising thing to hear from Schuyler. It never occurred to me to think that she really believed...

In the spring of 2005, Schuyler was evaluated by the diagnosticians and special educators at her school in Manor, Texas, near Austin. They c...