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May 26, 2014

Insufficient Instrument

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Today at Support for Special Needs : For a guy who's not too smart, I think I do a reasonably good job of navigating the chaos around ...
1 comment:
May 25, 2014

American Poison

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You're probably reading this on Sunday or Monday ("Happy" Memorial Day seems like a weird thing to say), but I'm writing t...
2 comments:
May 19, 2014

The Thin Line Between Wrong and Wrong

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Today at Support for Special Needs : But perhaps more importantly, for special needs parents, it's not always as simply the choice bet...
May 18, 2014

"...and my heart is closing like a fist."

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Schuyler and I are at a quiet burger place. We're having a late lunch after working on a homework project most of the afternoon, and the...
May 17, 2014

Borrowed Happy

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"So, this is my life. And I want you to know that I am both happy and sad and I'm still trying to figure out how that could be.&qu...
2 comments:
May 12, 2014

Advocacy, with Heart

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Today at Support for Special Needs : There's a balance to be struck, I imagine. We don't want hysterical, emotional professionals ...
1 comment:
May 5, 2014

On Early Intervention

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Today at Support for Special Needs : When Schuyler was born fourteen years ago, she was (perhaps irresponsibly) placed into the hands of t...
April 28, 2014

This Is Only a Test

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Today at Support for Special Needs : In Texas, our kids take the STAAR test, which replaces the TAKS test, which was probably preceded by ...
April 27, 2014

Stumbles

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It was a rough week. I won't lie. It was rough for me, and it was even worse for Schuyler. One thing I can say for certain about this we...
3 comments:
April 14, 2014

The Things We Know

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Today at Support for Special Needs : The challenging aspects of being the parent of a special needs kid aren’t always the things you don’t...
1 comment:
April 8, 2014

The Exquisite Joy of Nothing

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This week at Support for Special Needs : This week, we didn’t struggle to understand her, we didn’t have to manage seizures, and there wer...
1 comment:
March 31, 2014

The Long-Abandoned Path

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Today at Support for Special Needs : Returning to New England has given me the opportunity to think back on the last 10 years, and to reco...
March 25, 2014

Archipelago

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Today at Support for Special Needs : We're already on islands, many of us, but not in a vacation wonderland kind of a way. Our islands...
1 comment:
March 24, 2014

Twenty-four years ago today

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It's still complicated.
1 comment:
March 17, 2014

A Genuine Advocate and a Frank Conversation at SXSW

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Today at Support for Special Needs : I’d never heard anyone come out and admit that their company had been spooked by the internal divisio...
March 10, 2014

Great Expectations

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Today at Support for Special Needs : I’m writing about what I’m feeling here because I think it might be almost as common among special ne...
March 3, 2014

Hunting Monsters at SXSW

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Today at Support for Special Needs , for those attending SXSW this week and next: If you were paying close attention back at the top, you ...
February 24, 2014

Help Wanted

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Today at Support for Special Needs : She sees her future work life as an abstraction, probably because at her age, the future seems limitl...
2 comments:
February 19, 2014

Schuyler's Brain

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After Schuyler's most recent visit to her neurologist back in December, we were given a cd with images from her MRI. In what felt like a...
7 comments:
February 17, 2014

Diversity in Language

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Today at Support for Special Needs : As parents of children with disabilities, we are constantly looking for the word choices that reflect...