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April 28, 2014

This Is Only a Test

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Today at Support for Special Needs : In Texas, our kids take the STAAR test, which replaces the TAKS test, which was probably preceded by ...
April 27, 2014

Stumbles

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It was a rough week. I won't lie. It was rough for me, and it was even worse for Schuyler. One thing I can say for certain about this we...
3 comments:
April 14, 2014

The Things We Know

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Today at Support for Special Needs : The challenging aspects of being the parent of a special needs kid aren’t always the things you don’t...
1 comment:
April 8, 2014

The Exquisite Joy of Nothing

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This week at Support for Special Needs : This week, we didn’t struggle to understand her, we didn’t have to manage seizures, and there wer...
1 comment:
March 31, 2014

The Long-Abandoned Path

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Today at Support for Special Needs : Returning to New England has given me the opportunity to think back on the last 10 years, and to reco...
March 25, 2014

Archipelago

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Today at Support for Special Needs : We're already on islands, many of us, but not in a vacation wonderland kind of a way. Our islands...
1 comment:
March 24, 2014

Twenty-four years ago today

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It's still complicated.
1 comment:
March 17, 2014

A Genuine Advocate and a Frank Conversation at SXSW

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Today at Support for Special Needs : I’d never heard anyone come out and admit that their company had been spooked by the internal divisio...
March 10, 2014

Great Expectations

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Today at Support for Special Needs : I’m writing about what I’m feeling here because I think it might be almost as common among special ne...
March 3, 2014

Hunting Monsters at SXSW

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Today at Support for Special Needs , for those attending SXSW this week and next: If you were paying close attention back at the top, you ...
February 24, 2014

Help Wanted

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Today at Support for Special Needs : She sees her future work life as an abstraction, probably because at her age, the future seems limitl...
2 comments:
February 19, 2014

Schuyler's Brain

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After Schuyler's most recent visit to her neurologist back in December, we were given a cd with images from her MRI. In what felt like a...
7 comments:
February 17, 2014

Diversity in Language

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Today at Support for Special Needs : As parents of children with disabilities, we are constantly looking for the word choices that reflect...
February 10, 2014

Monsters Who Smile

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I'm sorry if you're getting tired of this story. I actually wrote this last week. One of the pitfalls of a weekly column, I guess. A...
2 comments:
February 3, 2014

You're worth what you're worth.

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Today at Support for Special Needs : My fears for that future, and they are legion, have little to do with what Schuyler will be able to d...
January 27, 2014

Transitions

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Today at Support for Special Needs : Special needs parents and their support professionals frequently talk about transitions. They are wil...
January 20, 2014

Here Be Dragons

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Today at Support for Special Needs : For the parents of special needs kids who have developmental and communication impediments to indepen...
January 13, 2014

The Simple Story

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Today, at Support for Special Needs : The thing I find sometimes is how much there is to learn in the simplified version she gives back. S...
January 8, 2014

On Competency and Agency

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One of the concepts you see referenced frequently in disability writing these days is to always presume competence. It's a straightforwa...
5 comments:
January 6, 2014

One Resolution

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Today at Support for Special Needs : What I’m doing by not saying anything is a form of silent consent. I let a little piece of verbal poi...