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March 17, 2014

A Genuine Advocate and a Frank Conversation at SXSW

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Today at Support for Special Needs : I’d never heard anyone come out and admit that their company had been spooked by the internal divisio...
March 10, 2014

Great Expectations

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Today at Support for Special Needs : I’m writing about what I’m feeling here because I think it might be almost as common among special ne...
March 3, 2014

Hunting Monsters at SXSW

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Today at Support for Special Needs , for those attending SXSW this week and next: If you were paying close attention back at the top, you ...
February 24, 2014

Help Wanted

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Today at Support for Special Needs : She sees her future work life as an abstraction, probably because at her age, the future seems limitl...
2 comments:
February 19, 2014

Schuyler's Brain

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After Schuyler's most recent visit to her neurologist back in December, we were given a cd with images from her MRI. In what felt like a...
7 comments:
February 17, 2014

Diversity in Language

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Today at Support for Special Needs : As parents of children with disabilities, we are constantly looking for the word choices that reflect...
February 10, 2014

Monsters Who Smile

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I'm sorry if you're getting tired of this story. I actually wrote this last week. One of the pitfalls of a weekly column, I guess. A...
2 comments:
February 3, 2014

You're worth what you're worth.

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Today at Support for Special Needs : My fears for that future, and they are legion, have little to do with what Schuyler will be able to d...
January 27, 2014

Transitions

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Today at Support for Special Needs : Special needs parents and their support professionals frequently talk about transitions. They are wil...
January 20, 2014

Here Be Dragons

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Today at Support for Special Needs : For the parents of special needs kids who have developmental and communication impediments to indepen...
January 13, 2014

The Simple Story

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Today, at Support for Special Needs : The thing I find sometimes is how much there is to learn in the simplified version she gives back. S...
January 8, 2014

On Competency and Agency

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One of the concepts you see referenced frequently in disability writing these days is to always presume competence. It's a straightforwa...
5 comments:
January 6, 2014

One Resolution

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Today at Support for Special Needs : What I’m doing by not saying anything is a form of silent consent. I let a little piece of verbal poi...
January 2, 2014

A Complicated Homecoming

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I don't return home to Odessa very often. Probably not nearly enough, anyway. It's been almost three decades since I actually lived ...
4 comments:
December 31, 2013

I will try.

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At Support for Special Needs : I’m not sure I’d call any of these "resolutions". But as we march off into 2014, I will try to be...
December 23, 2013

Christmas Eve Eve

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Today at  Support for Special Needs : I mentioned this last year, but one of the things I value the most about a site like this one is h...
December 18, 2013

My All, at Fourteen

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This week always presents a natural time to stop and reflect on where Schuyler is in her life, with her birthday only a few days away. It...
8 comments:
December 16, 2013

The Buccaneer Life

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Today at Support for Special Needs : The thought of striking out against that, of hoisting a flag of defiance and breaking down some of th...
December 9, 2013

The Hardest Forgiveness

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Today at Support for Special Needs : As parents, we’re probably almost certainly unprepared for the disabilities of our children, at least...
December 5, 2013

Injustice League

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This week (sorry, I forgot to publish this on Monday) at Support for Special Needs : What I truly want is for my friends to run out of hur...