Fighting Monsters with Rubber Swords

Over the weekend, I gave a speech, the closing keynote at the 2011 Angelman Syndrome Foundation Biennial Conference . It was a somewhat dif...

("Black in White" by Luke Chueh) Let us take a moment to consider the strange, sad story of how Marissa's Bunny lost its ...

This is why it matters. From Courthouse News Service : DAYTON, Ohio (CN) - Dayton police "mistook" a mentally handicapped teen...

Just a word, Redux , a photo by Citizen Rob on Flickr. It's been almost two months since I gave my own perspective on the so-called ...

I've described how Schuyler tries so hard and almost succeeds in being just like everyone else, but within that "almost" lies ...

R & S , a photo by Citizen Rob on Flickr. This Father's Day weekend, I'm going to take it easy, maybe hang at the pool with Sc...

There's a story making the rounds , from North Carolina: MATTHEWS, N.C. -- The mother of 12-year-old Jackson Helms said her son was re...

S , a photo by Citizen Rob on Flickr. We are at the pool, and Schuyler is swimming. If today were a Saturday or a Sunday, the place woul...

Every family has its traditions. A few of ours are a little strange, I suppose. Some have nothing to do with Schuyler's disability. W...

R & S , a photo by Citizen Rob on Flickr. We talk a lot about the "disability community", and it makes sense to think of our...

Having written about Schuyler's impending IEP meeting, I suppose I should give a brief follow-up. The short version is that it felt lik...

I think the most effective way to get people to stop using the "r word" is not so much to try to ban its use or impose some kind ...

The Purple Ninja and Bughead Originally uploaded by Citizen Rob Tomorrow is Schuyler's ARD meeting. We'll meet with her school team...

"No man has learned anything rightly, until he knows that every day is Doomsday." -- Ralph Waldo Emerson It's a popular tre...

Arrr. Originally uploaded by Citizen Rob "[We] see the face of God within the disabled. Their presence is a sign of God, who has chosen...

Wired Originally uploaded by Citizen Rob So the results of Schuyler's EEG are in, and they are... exactly what I thought they might be. ...

The world is just bound and determined to make me take a stand on the "R Word", isn't it? The short story of why this came ...