Fighting Monsters with Rubber Swords

There’s a dream I’ve had repeatedly in my life, including quite recently. In this dream, I am driving down a long, remote West Texas road at...

Here’s a fun fact that I just recently learned. When they (the people who make up such things, almost certainly with a clipboard in hand) de...

Last week I had a heart catheter procedure, to measure the amount of blockage in my shitty, shitty heart and possible put in a stent or two....

So I guess I’m going to talk about this thing, which has nothing to do with disability advocacy or Schuyler, except of course it does, becau...

Today at Support for Special Needs : Excerpt:  On a good day, especially when she doesn't have to speak too much, Schuyler passes pr...

Today at Support for Special Needs I don't know what I was expecting, but Schuyler's brain, by virtue of its remarkable rewired st...

We've embarked down another path with Schuyler. It's not a path we were hoping to ever step foot upon, but then, we were perhaps ent...

This morning, over at Support for Special Needs : His advice to us has been more therapeutic than medical. "Let her be herself,"...

Yes, it's November, which means that for the second year in a row, I'm growing a sad little creature on my lip in the cause of pr...

It began, like so many silly things do here in the heady days of The Future, with a comment I made on Facebook. "I lost ten pounds in...

This week at Support for Special Needs , I've written about the awful story of the Children's Hospital of Philadelphia's shamefu...

Sometimes we allow ourselves to forget. Sometimes the monster sends a friendly reminder. Friday was a rough day for Schuyler. Not one b...

The concerns and issues surrounding men's health don't get nearly as much media attention as they should, but it's probably our ...

There's a lot to say about Schuyler's ambulatory EEG, I suppose, but perhaps the most important, at least at this early stage before...

Superhero Originally uploaded by Citizen Rob This is what we do now. We watch Schuyler, and we wait for signs that she's having absence...

S Originally uploaded by Citizen Rob Well, here we are. This morning saw an event that has loomed in the future, not as a bad thing, but ju...

Pondering monsters Originally uploaded by Citizen Rob "...Heaven have mercy on us all - Presbyterians and Pagans alike - for we are...

I don't usually cross-post much, and I tend to keep the diabetes talk off this blog, for the simple reason that it tends to bring out th...

A special message for all my fellow polymicrogyria peeps and families with other related brain monsters (yo, what up?). This convention is ...

Every time I write about corporal punishment, I get more angry emails and comments than any other topic. Seriously. And keep in mind the n...