tag:blogger.com,1999:blog-22878815.post3278692712422236711..comments2023-10-21T06:18:41.537-05:00Comments on Fighting Monsters with Rubber Swords: Charmed LifeRobert Hudsonhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-22878815.post-89031984636664562102010-10-19T21:11:59.629-05:002010-10-19T21:11:59.629-05:00This is about the most beautiful piece about paren...This is about the most beautiful piece about parenting I have ever read. Thank you.<br />Maggie g.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-67722840733755233922010-10-05T05:06:54.932-05:002010-10-05T05:06:54.932-05:00It's nice to hear from a father now and then. ...It's nice to hear from a father now and then. My husband doesn't speak of his anxieties or his joys much. Thank you for the small glimpse into fatherhood. Perhaps I will get his one of your books since he doesn't read blogs.Reneehttps://www.blogger.com/profile/17231640306007208483noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-27807473924320804572010-09-29T16:21:34.916-05:002010-09-29T16:21:34.916-05:00I honestly can't believe it took that long for...I honestly can't believe it took that long for an indignant, sarcastic (and so so so predictably anonymous) evangelical to step up on behalf of their Imaginary Friend.<br /><br />Also, this:<br /><br /><i>People who preach love and acceptance and kindness and do their best to live up to what they preach??</i><br /><br />Doesn't even come close to describing my experiences with evangelical Christians. Particularly that last part.<br /><br />Now go forward in Christ, anonymously...Robert Hudsonhttps://www.blogger.com/profile/15462451435441751837noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-31655396183033097392010-09-29T16:12:36.065-05:002010-09-29T16:12:36.065-05:00Evangelizing Christians??????
NOOOOOOOOO! The horr...Evangelizing Christians??????<br />NOOOOOOOOO! The horror! People who preach love and acceptance and kindness and do their best to live up to what they preach??<br />How icky! I mean, if you want to go to church, I guess that's okay, as long as you don't try to tell other people about it and invite them to come along.<br />Good thing you're smart enough to see through their evil agenda.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-5139755927004084432010-09-27T20:17:07.210-05:002010-09-27T20:17:07.210-05:00Great post. I love your candidness and share all o...Great post. I love your candidness and share all of the same 'fears' and have only recently come to think about the long-term future with our 8-year old with CP and our sixth-month old with CP. I, too, keep some of those shining personal moments to myself because I think it's part of the fuel that feeds my writing. :)Timothy https://www.blogger.com/profile/02904550554652482257noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-50523337651975360352010-09-27T19:48:26.027-05:002010-09-27T19:48:26.027-05:00Hi - You say you are living a life unlike anyone e...Hi - You say you are living a life unlike anyone else's, but based on the what I've read of your book so far and your most recent blog, it appears that our lives have much in common. My 6 yr old, Jacob, has bilateral diffuse PMG. He also is non verbal and is learning to use a communication device. He has many mobility issues, but understands and is a very social little boy. He was diagnosed at 9 months by Dr Dobbins after a long period of unknowns and advice not to research the possibilities. He too, has brought incredible joy into our lives, but with that also fears that are quite hard to describe.<br />JodiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-85570744526118769902010-09-26T19:33:58.910-05:002010-09-26T19:33:58.910-05:00I think Schuyler is an amazing, inspiring little g...I think Schuyler is an amazing, inspiring little girl. I know that raising her is a challenge, but it's mostly a blessing, too, right? I'm glad you share your story with us and I hope you continue to do so for the foreseeable future. <br /><br />No matter whether Schuyler lives independently or not, I think she's a person who's going to make an impact on the world. I know, I know, this is nothing that hasn't been said before, but I still wanted to say it.thisbehttps://www.blogger.com/profile/13487946927732435991noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-49266070160551441852010-09-26T06:44:46.319-05:002010-09-26T06:44:46.319-05:00Beautiful Rob. A charmed life indeed. I wonder if ...Beautiful Rob. A charmed life indeed. I wonder if people who do not have a non-typical child living with them also know that there is a beauty which surrounds it. Sometimes we don't talk about that - the gift it all is to have a child that is so specially 'yours.' I know others look at my life - a daughter who is a teen with autism, a neuro-typical pre-teen and a youngster with Type 1 diabetes and they think 'There but for the grace of God go I.' - but maybe that's also what I am thinking about their lives too ;0)Pennyhttps://www.blogger.com/profile/11137611120689810820noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-39683509084594363172010-09-25T20:49:42.554-05:002010-09-25T20:49:42.554-05:00I just finished reading your book on the high reco...I just finished reading your book on the high recommendation from my sister and brother. It was phenomenal and a little personal. Being that Im raising my 19 month old with Spina Bifida and hearing loss, I see many similarities through out your book. My daughter sounds a bit like Schuyler as in wherever we go, she makes friends. She has this gorgeous smile and is constantly waving or playing peek a boo with strangers. I think they are always surprised to see my toddler with a great personality and funky hearing aids behind her ears :) She aint babbling either so i really can get you re your daughter. Such is life as we know it... thanks for the book and your posts...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-28334526826572499662010-09-24T23:11:58.470-05:002010-09-24T23:11:58.470-05:00Beautifully written and a good reminder to me and ...Beautifully written and a good reminder to me and my hubby as we raise our SN daughter. What a privilege to be her parents even with the extra challenges!! <br /><br />CarrieCarrieThttps://www.blogger.com/profile/06806625193810087841noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-91595728030794646092010-09-24T18:36:24.228-05:002010-09-24T18:36:24.228-05:00Great post. She may end up living with you, yes, b...Great post. She may end up living with you, yes, but that doesn't preclude her having a full, interesting, and happy life, which is what it sounds like you want for her (and you).wenhttps://www.blogger.com/profile/06342067075957452649noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-14199596497482924332010-09-24T15:51:23.442-05:002010-09-24T15:51:23.442-05:00Can you lo-jack Schuyler's box of words?Can you lo-jack Schuyler's box of words?Pat in Austinnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-66287198804418621252010-09-24T14:11:41.651-05:002010-09-24T14:11:41.651-05:00No, I meant that the possibility of her device bei...No, I meant that the possibility of her device being lost or stolen is a persistent fear. Believe me, if that happened, you would have heard about it.Robert Hudsonhttps://www.blogger.com/profile/15462451435441751837noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-18182328406761146742010-09-24T13:19:23.536-05:002010-09-24T13:19:23.536-05:00Where do I get my becrowned portrait? Want one. An...Where do I get my becrowned portrait? Want one. And you slipped in a a $7000 communication device went missing. WTF?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-30485202538981916762010-09-24T08:51:55.329-05:002010-09-24T08:51:55.329-05:00Holy cow that was gorgeous. So umm, get your bloo...Holy cow that was gorgeous. So umm, get your blood sugars in order. Don't be one of those caretakers who doesn't care for himself. Obviously, you need to stick around for as long as possible. -- StellasmomAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-85298111822536645992010-09-24T01:18:09.686-05:002010-09-24T01:18:09.686-05:00Oh YIKES, here is an Evangelical Christian that ca...Oh YIKES, here is an Evangelical Christian that cares about you, Julie, and your Precious Purple Snowflake. I hesitate to write this because I don't want to give you fits of anxiety. <br /><br />One thing on that list I don't think you have to worry about is bad fathering decisions. I'm sure sometimes you feel like you're flying by the seat of your pants. You have been entrusted with this special and unique Snowflake and from where I'm sitting you're looking more than adequate.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-46413891213656009372010-09-24T00:02:47.890-05:002010-09-24T00:02:47.890-05:00Really, just lovely. Thanks so much for sharing.Really, just lovely. Thanks so much for sharing.Sherryhttps://www.blogger.com/profile/10532021403049986044noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-52367921496225744812010-09-23T23:10:28.422-05:002010-09-23T23:10:28.422-05:00What Nicole said.What Nicole said.Arielhttps://www.blogger.com/profile/06814302207938982159noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-82897534358252949822010-09-23T22:49:39.509-05:002010-09-23T22:49:39.509-05:00A beautiful post, Rob. Not much more to say.A beautiful post, Rob. Not much more to say.Nicole Phttps://www.blogger.com/profile/11847231791131970750noreply@blogger.com